Somewhere around 30,000 Americans currently suffer from Cystic Fibrosis. Inogen One aims to support people with CF by making their lives easier with medical oxygen. Cystic Fibrosis can often require medical oxygen because the mucus that develops can block airways in the lungs and can cause poor blood vessel function.
The Cystic Fibrosis Foundation is the number one funder of research for CF. The CF Foundation’s website is a fantastic resource for all constituents whose lives have been affected by Cystic Fibrosis. It includes features such as:
-CF At School
-Knowing your CF
-And much more…
The CFF website can truly be customized to each user. By putting in your zip code, entering in other information, and visiting age-specific portals and other specific portals, you can create a resource tailored to your needs.
‘Living With CF’ is the CFF’s portal for its efforts to improve the quality of life for people with CF, and the motto of this section is “Adding Tomorrows”. They have specialized care, therapies, and tools for different age groups, and they cite that ‘more than 45 percent of the CF patient population is now age 18 or older’ as evidence that these measures do work, and that “adding tomorrows” is a realistic and attainable proposition.
Check back with the Inogen One blog and Twitter periodically for news and resources not only related to the Cystic Fibrosis Foundation, but for all things related to this condition.
Some information courtesy of:
Photo Credit: Food and registration, Flickr, JoelK75